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My Wife Noticed My TD Symptoms First, Then I Found Treatment

Steve was compensated by Neurocrine Biosciences, Inc. to share his story.

Steve, a Fort Worth, Texas native and married father of five who enjoys singing and watching football shares his story about living with a mental health condition and tardive dyskinesia. Steve shares his story because he believes there should no longer be stigma attached to talking about mental health and he wants people to know that there are treatment options available for those living with TD.

In his early 30s, Steve started noticing bipolar disorder symptoms and found he was withdrawing from society – while also struggling with substance abuse. He was later diagnosed with bipolar disorder, depression and anxiety. After seeking treatment for his mental health, Steve was prescribed a variety of medications.

Approximately four years later, Steve’s wife began to notice his involuntary facial movements. “My wife would say, ‘why do you do that with your mouth?’” recalled Steve. However, Steve didn’t know what was causing his facial movements and he never had an answer for her.  Steve chewed gum constantly to try to cover up his facial movements. 

After seeing a video of himself singing karaoke, Steve was able to see just how pronounced his uncontrollable movements were. “This is when it really hit me that my mouth movements did not look normal,” he explained and added, “I was ashamed about how my mouth was moving. The symptoms really ruined my self-esteem and confidence for a while.” Steve was now fully aware he was experiencing uncontrollable movements but did not initially know that his erratic and jerking facial movements had a name. 

Steve made an appointment with his psychiatrist and discussed the uncontrollable movements he was experiencing. The psychiatrist diagnosed Steve with tardive dyskinesia and explained the treatment options. For Steve, it was a relief to finally have a diagnosis and real information about his uncontrollable movements. 

TD is a real, chronic condition that affects approximately 600,000 people in the U.S. The uncontrollable movements from TD may be disruptive to people’s lives due to the symptoms’ themselves and the impact they can have on social and emotional well-being. TD is associated with taking certain mental health medications used to treat bipolar disorder, schizophrenia, depression, and/or anxiety.

Steve and his psychiatrist discussed INGREZZA® (valbenazine) capsules, a prescription medicine to treat adults with the uncontrollable movements of TD. After talking with his doctor and reviewing the benefits and side effects, including the most common side effect of sleepiness, Steve and his psychiatrist decided INGREZZA was a good choice for him.  After taking INGREZZA, he was happy to see the medication was working for him. This is just Steve’s experience, others may have a different experience with INGREZZA.  

Ingrezza is one pill, once-daily and Steve takes it as his doctor prescribed.

Please see Full Important Safety Information below.

After experiencing less body movements Steve noted, “my confidence is much better.” “I smile more. I feel like I look better.” Now that Steve is able to treat his TD, he is passionate about raising awareness of TD and letting others know that they can manage their uncontrollable movements.  

Interested in learning more about INGREZZA? You can check out resources about tardive dyskinesia and if you need help finding a healthcare provider with experience diagnosing and treating TD, there is a Find a Specialist tool.

Important Information

Approved Use

INGREZZA® (valbenazine) capsules is a prescription medicine used to treat adults with movements in the face, tongue, or other body parts that cannot be controlled (tardive dyskinesia).  

It is not known if INGREZZA is safe and effective in children.

IMPORTANT SAFETY INFORMATION

Do not take INGREZZA if you: 

  • are allergic to valbenazine, or any of the ingredients in INGREZZA.

INGREZZA may cause serious side effects, including: 

  • Sleepiness (somnolence). Do not drive, operate heavy machinery, or do other dangerous activities until you know how INGREZZA affects you.
  • Heart rhythm problems (QT prolongation). INGREZZA may cause a heart problem known as QT prolongation. 

Symptoms of QT prolongation may include:

  • fast, slow, or irregular heartbeat
  • dizziness or fainting
  • shortness of breath

Tell your healthcare provider right away if you have a change in your heartbeat (a fast or irregular heartbeat), or if you faint.

  • Abnormal movements (Parkinson-like). Symptoms include: shaking, body stiffness, trouble moving or walking, or keeping your balance.

Before taking INGREZZA, tell your healthcare provider about all of your medical conditions including if you: have liver or heart problems, are pregnant or plan to become pregnant, or are breastfeeding or plan to breastfeed.   

Tell your healthcare provider about all the medicines you take, including prescription and over-the-counter medicines, vitamins, and herbal supplements.  

The most common side effect of INGREZZA is sleepiness (somnolence). Other side effects include changes in balance (balance problems, dizziness) or an increased risk of falls, headache, feelings of restlessness, dry mouth, constipation, and blurred vision.

These are not all of the possible side effects of INGREZZA. Call your doctor for medical advice about side effects. You are encouraged to report negative side effects of prescription drugs to the FDA. Visit MedWatch at www.fda.gov/medwatch or call 1-800-FDA-1088.

Please see accompanying INGREZZA full Product Information

The following promotional article is sponsored by Neurocrine Biosciences

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